Usher syndrome study.sav (17.11 kB)

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posted on 14.07.2016 by Gavin Dean, Amy Orford, Kimberley Smith
The aim of this study was to determine if psychosocial wellbeing predicts the health-related quality of life (HRQOL) of people with Usher syndrome. 
Ninety UK-resident adults with Usher syndrome were recruited through deafblind-related charities, support groups and social groups. All participants took part in a survey that measured their physical and mental HRQOL, depressive symptoms, loneliness and social support. Measured confounders included age, sex and health-related characteristics. Hierarchical multiple linear regression analyses examined the association of each psychosocial wellbeing indicator with both physical and mental HRQOL while controlling for confounders in a stepwise manner.

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Research grant: Usher Life

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